Thriving with Hemophilia
Saturday, June 9, 2012
10:30 PM


Patient Story: Reid



Reid was diagnosed with hemophilia at birth and has been relying on Puget Sound Blood Center for medical care and education his entire life. It takes thousands of donations to allow a baby with hemophilia to grow up to be a man, he says.


Link: http://www.nhlbi.nih.gov/health//dci/Diseases/hemophilia/hemophilia_signs.html
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Adjusting to life with Hemophilia A
Parents of two boys with severe hemophilia A discuss how their lives have changed.

Link: http://www.youtube.com/watch?feature=player_embedded&v=93QulYKFEOU


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Haemophilia
❝ A Blood Disease ❞


Jacqueline
Joey
BMS 2M05
,
18, Ngee Ann Poly.
Feel free to read around, if u have any questions just write in the chatbox.






LYRICS
(Verse 1)
The story starts when I was born.
The doctors said I was not the norm.
X chromosomes that are infected.
I get a cut - platelets can't detect it.

(Chorus)
I have a very rare disease.
I can't fall down or I'll scrape my knees.
If you find a cure, won't you set me free?
Hemophilia is killing me.

(Verse 2)
Plasma is one thing that makes up blood.
Deficiencies can cause your cuts to flood.
Got it from mom - no clotting factor 8.
Not good at sports - I guess it was fate.

(Chorus)
I have a very rare disease.
I can't fall down or I'll scrape my knees.
If you find a cure, won't you set me free?
Hemophilia is killing me.

(Verse 3)
If you're a male your odds are 1 in 5,000.
But don't get scared, this number is rounded.
Bleeding won't stop unless I get an infusion.
One time when I was three, I was riding my skateboard and I hit a rock and fell off and there was a pool of blood then my parents came running outside and there was a lot of confusion.
(Chorus)
I have a very rare disease.
I can't fall down or I'll scrape my knees.
If you find a cure, won't you set me free?
Hemophilia is killing me.






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